Archive for announcement

Survival Quest!

Posted in announcement, medicine with tags , on February 8, 2016 by shewalkssoftly

It’s been a long time since I’ve given a health update on this blog because I’ve wanted the focus to be on interesting and entertaining content. But the truth is, I’m quite literally in a fight for my life.

My amazing father created this page, which gives a great summary of the story and status:

Help Bring My Daughter Back to Life

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As I said to some of my friends recently, I love this planet…I know some really great people on this planet…and I’d like to stay on this planet a while to make, do, and help things. The medical system gave up on me for 21 years, then miraculously diagnosed me, then found a cure, then denied me the cure. Time is now of the essence.

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I know times are tough, so no pressure to donate. If you feel comfortable doing so, it would really help to share the link via social networking (and/or personal email if possible since things get lost in the FB shuffle). If you do donate, please make sure I have your mailing address. When I’m able, I want to send a handmade/written token of gratitude to everyone who helped make my recovery possible!

Much love and thanks…

Help Bring My Daughter Back to Life

Countdown to Halloween

Posted in announcement, halloween, vintage with tags , , on September 26, 2015 by shewalkssoftly

Once again, I’ll be participating in the Countdown to Halloween, with the “Cryptkeepers” who gather every year to bring spooky treats as the holiday draws near (I usually begin October 1st).

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Thanks, as always, to John Rozum for organizing this blog event. If you want to participate, head to Countdown to Halloween.

Call For Halloween Submissions!

Posted in announcement, halloween with tags , on September 10, 2015 by shewalkssoftly

It’s almost the best time of year again! I know it’s a little early (but believe me, it’s been hard to wait THIS long to mention Halloween).

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I’ll be doing a countdown again, and would love to see your favorite Halloween art, props, products, foods, decorations…well, you get the idea.

Please share the amazing things you come across, either here or on the SWS Facebook page. As always, I’ll give credit and/or link to your personal projects if I post your suggestion.

Lyme Lags

Posted in announcement, bugs, horror, sci-fi with tags , , , , on July 16, 2015 by shewalkssoftly

I’ve been skipping a bunch of days on SWS recently due to spending every moment of my days in such crushing full body pain that it’s difficult to move…even breathe. It’s utterly indescribable (this is post is punctuated with centipede monsters because a search for “spirochete monsters” turns up nothing).

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This is nothing new. I’ve had pain of this kind without one second of relief for eight years straight. I do my best to push through it, despite being housebound since 2011.

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But it has reached unprecedented heights, and there have been massive delays beyond my control and allergies to all of my Lyme Disease treatment options thus far. That’s the worst part…feeling these bugs squeeze the life out of me in the most slow, agonizing way without any major recourse in the immediate future.

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I’ll be attempting to orchestrate treatment through my diagnosing physician on Monday via phone, although he is across the country (it takes months to years to get in with a Lyme literate doctor so I still have months to go despite making an appointment immediately upon diagnosis).

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In the meantime, forgive me if I miss a day here and there!

Kintsukuroi: Sacred Scars

Posted in announcement, art, Books, photography, surreal with tags , , , , on May 1, 2015 by shewalkssoftly

Around the time I made this post, I began to conceive of ways to creatively share the transformative metaphorical implications of Kintsukuroi (objects “repaired with gold,” considered more beautiful for having been broken).

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The result was a labor of love, drawn out over many months due to health complications, but finally taking shape. I’m partnering with the remarkable Nina Pak to create an art book with a series of human Kintsukuroi photographs; surreal, evocative portraiture of subjects with compelling markings and stories. Each image will be a vignette unto itself, inspired by the symbols, archetypes and myths to which the subject feels a particular connection.

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But I didn’t want to limit artistic expression, narrative or empowerment through this material to a book project, so I developed Sacred Scars where anyone can submit a story and be celebrated in a community of those who appreciate that we each have a unique, valuable Hero’s Journey.

There is also a Facebook Group which will offer its own exclusive content and opportunities for involvement.

If this profound topic resonates and you’d like more information; if you or someone you know has a story to tell and would like to be featured in the book or website (we are taking model applications right now!), please head over to:

SacredScars.org
Facebook Group
Mailing List

This project means the world to me, but I am admittedly a totally inept social networker and physically unable to do much promotion. I’d truly appreciate anyone’s help spreading the word via email/networks (I’ll be sending fun prizes to my biggest helpers!).

*Stay tuned for the Kickstarter! Members of the mailing list and Facebook group will have access to a preview of the campaign before it goes live.

Twist of Lyme: My Diagnosis at Last!

Posted in announcement, medicine with tags , on April 24, 2015 by shewalkssoftly

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Anyone who has followed this blog for a while probably saw me allude to my failing health. What I’ve represented here in the occasional post is not even the smallest fraction of my daily experiences. I wanted this site to be about creative discovery, not my own maladies.

Another reason I was not so forthcoming: I ran the gamut of dozens upon dozens of debilitating symptoms, but an actual diagnosis beyond my myriad nutritional/hormonal deficiencies, strange blood anomalies, and seemingly discrepant individual conditions eluded every practitioner.

After 8 years of crippling pain, 70 different specialists, countless hospitalizations, hundreds of tests, medications and supplements, wacky alternative remedies, a host of complications in every system of my body, losing my ability to walk more than a few steps, type, speak/chew (due to jaw pain) and just about any other function required for daily life…one doctor solved the mystery two days ago.

I have late stage chronic Lyme disease.

I belong to the largely invalidated subset of patients that has had Lyme for so long (possibly 27 years!) that it no longer shows up in bloodwork; it hides in organs, tissues, and coagulated deposits. My doctor was savvy enough to examine a sample under a microscope himself, after many negative standard labs, and sure enough…he saw classic Lyme spirochetes (which I got to see squirming around on video of my own cells. Not the ideal home movie, yet somehow vindicating). They are kind of disgusting, but under extreme magnification look like they’d be delicious with butter.

I’m hovering somewhere between shock, regret, anger at the treatment I received during my past decades of suffering, and full-on Parasite Assassin/Lyme Advocate mode. As days go by, I expect to embrace the latter as I embark on a lifelong course of supportive care designed to keep the parasites at bay. These buggers damn near killed me…but they did not.

Spirochetes, your days in this host body are numbered.

Calling All Brainstormers! Join My Kickstarter Team!

Posted in anatomy, announcement, art with tags , , on March 26, 2015 by shewalkssoftly

From what I’ve seen, this blog has some incredibly creative, talented, bright, out-of-the-box readers…
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Soon, I am debuting a Kickstarter campaign very dear to my heart. No public spoilers quite yet, except for the fact that it’s a gorgeous photography book commemorating the triumph of the human spirit, via surrealist art and narrative.

JOIN MY BRAINSTORMING TEAM!

What does this mean? You’ll get the first look at everything, before it’s posted anywhere, including Kickstarter…and some nifty little perks as the project goes forward. And candy. Definitely candy.

Lengthy feedback is never required, so this is not a time commitment. You don’t even have to say anything at all unless you feel moved to comment.

Leave a comment or contact me to get our little focus group going!

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