I’ve been skipping a bunch of days on SWS recently due to spending every moment of my days in such crushing full body pain that it’s difficult to move…even breathe. It’s utterly indescribable (this is post is punctuated with centipede monsters because a search for “spirochete monsters” turns up nothing).
This is nothing new. I’ve had pain of this kind without one second of relief for eight years straight. I do my best to push through it, despite being housebound since 2011.
But it has reached unprecedented heights, and there have been massive delays beyond my control and allergies to all of my Lyme Disease treatment options thus far. That’s the worst part…feeling these bugs squeeze the life out of me in the most slow, agonizing way without any major recourse in the immediate future.
I’ll be attempting to orchestrate treatment through my diagnosing physician on Monday via phone, although he is across the country (it takes months to years to get in with a Lyme literate doctor so I still have months to go despite making an appointment immediately upon diagnosis).
In the meantime, forgive me if I miss a day here and there!