Anyone who has followed this blog for a while probably saw me allude to my failing health. What I’ve represented here in the occasional post is not even the smallest fraction of my daily experiences. I wanted this site to be about creative discovery, not my own maladies.
Another reason I was not so forthcoming: I ran the gamut of dozens upon dozens of debilitating symptoms, but an actual diagnosis beyond my myriad nutritional/hormonal deficiencies, strange blood anomalies, and seemingly discrepant individual conditions eluded every practitioner.
After 8 years of crippling pain, 70 different specialists, countless hospitalizations, hundreds of tests, medications and supplements, wacky alternative remedies, a host of complications in every system of my body, losing my ability to walk more than a few steps, type, speak/chew (due to jaw pain) and just about any other function required for daily life…one doctor solved the mystery two days ago.
I have late stage chronic Lyme disease.
I belong to the largely invalidated subset of patients that has had Lyme for so long (possibly 27 years!) that it no longer shows up in bloodwork; it hides in organs, tissues, and coagulated deposits. My doctor was savvy enough to examine a sample under a microscope himself, after many negative standard labs, and sure enough…he saw classic Lyme spirochetes (which I got to see squirming around on video of my own cells. Not the ideal home movie, yet somehow vindicating). They are kind of disgusting, but under extreme magnification look like they’d be delicious with butter.
I’m hovering somewhere between shock, regret, anger at the treatment I received during my past decades of suffering, and full-on Parasite Assassin/Lyme Advocate mode. As days go by, I expect to embrace the latter as I embark on a lifelong course of supportive care designed to keep the parasites at bay. These buggers damn near killed me…but they did not.
Spirochetes, your days in this host body are numbered.