I’m sorry it’s been a bit more around here. I was in the hospital last week, and back again this week (not in for another major surgery, thank goodness). I just got home and I’m spent! But I’ll resume regular posting ASAP.
Archive for the announcement Category
One year ago, I was pretty certain my health couldn’t get worse. I was bed bound, unable to communicate via speech or typing, barely able to eat and unable to perform the simplest of tasks due to pain. That had to be the low point, right?
Well, on March 4th I woke up with stomach cramps. By the evening I was doubled over, choking back screams in the ER, until my CT scan revealed an intestinal perforation, requiring open surgery. They tried to delicately explain that the operation I was about to have is one of the worst procedures out there to recover from (even for someone without a CNS disorder that amplifies pain 100 fold). When they went in, they discovered such massive infection that I was mere hours away from going septic and losing my life. It still gets me misty eyed thinking of my father…and my dearest loved ones…getting that news.
I’ll skip details of the grueling recovery, because the point of this post is gratitude!
I didn’t die.
Nor did I die when they had to go in and do another emergency open surgery for scar tissue obstruction months later! Sheesh.
Nope, didn’t die then either.
After the second operation (which was actually my third major abdominal procedure), when I was painstakingly starting to get up and take my first few steps, I enlisted the help of my best friend and together we made a mini mix of inspiring 80’s “training montage” songs. A few selections:
So when I got up, I’d put my phone in my IV pole tray and have these songs playing as I ventured out into hospital hallways.
…a little much needed comic relief for everyone! It made the pain a tad more bearable to see the laughs, smiles and thumbs up from the staff and fellow patients as I slowly went by.
The past year has been the most astoundingly challenging, and most profoundly revelatory of my life. While pain still prohibits me from joining the land of the living quite yet, in many ways I am starting to heal from an “incurable” illness against all odds. You better believe I will continue that process until I am fully functional. Every little thing feels like a miracle despite the intense pain remaining. Eating, breathing, READING…you name it!
Some of you have been with this blog for the whole trajectory thus far, and I thank you from the bottom of my heart. Here’s hoping that one year from now I will still be sharing arts and oddities, with the newfound freedom of one who has regained life and limbs! I must believe that each and every day, my strange miracle of recovery takes hold a little more.
I’ve wanted to open up a blog store for ages but couldn’t physically handle a fraction of the creation work, given my medical situation.
I’m amazed by the incredible kindness of some people in light of my extreme challenges. My friend Eric took it upon himself to make the store happen for me! I sent him raw design material and concepts…he put it all together.
We made a number of designs with the kind of classy, dark vibe that feels like home to me.
Some of the options are made from actual silent film caption cards.
When I’m recovered enough from hand pain to start crafting again I’ll be creating some non-logo, exclusive designs. I can’t wait!
Click on the particular design title you like at the Store Home, and you’ll see many colors and products available.
Honestly, I have a bit of an excessive modesty problem and it feels odd suggesting anyone buy things with my logo on them (I know money is tight these days!)…but they are just so darn pretty! I’d be truly honored if anyone chooses to support the site.
All proceeds go toward treatment for a really difficult medical condition.
Eric, I can’t thank you enough for your hard work, patience and skills!
(thank you Mr. Hitchcock!) “Dear friends and followers, I disappeared last week b/c I was rushed into emergency surgery (a major open surgery procedure, unfortunately). I’m still in the hospital and will be recovering for quite a while. Bear with me and my little sliced up guts! I’ll get back to posting ASAP!”
Thanks Everyone, for continued support and Energy. I will be Dana’s acting fingers for posts, but rest assured it shall be her whimsy and spirit that guides the posts–though this one is done as a nod to her spirit while I await some more sources. Thank you all. BVM.
Dana is recovering from emergency surgery a couple of nights ago. All I know is that it was unexpected (hence the emergency) and that they managed to clear out some scar tissue that was present from her March 5th, 2013 surgery.
Dana has managed a few brief texts in the past several hours, but was MIA for 24 hours after saying she was in the ER. I’ll leave details up to Dana to speak about in the future, or will let you all know sooner when she is well enough to convey more. Dana is blessed for the support and love of us all, and I thank you for the positive energy to give this well needed boost to Dana. This girl has such will, strength, and… guts!
A few blog announcements…
1) There is a new FACEBOOK PAGE for instant access to posts as they go up. PLUS, to make it extra interesting, I will be sharing a mixed flurry of arts and oddities on the page that are NOT posted here. So please add or follow.
2) I am removing the disclaimer about my medical issues that has been on the bottom of my posts for the past year.
Typing is still too painful for the most part, but I am convinced that I WILL recover this year (doctor predictions be damned!)…so, although I continue to contend with it, I’m taking the illness off the site, until further notice.
3) There will be a new occasional quote feature (with visuals) to post the wisdom/humor/joy/depth I’ve encountered in the words of others during my period of relative silence. I suppose this takes the blog to a more personal level, via a small window into my brain and the things that move me.
4) With the aid of a dearly helpful friend, I will be opening an online store! First for SWS products, then personal designs when I am once again up to making things. All proceeds go to medical care.
Now let’s all imagine that my healthy will gracefully allow these things to happen! :-) Thanks so much for reading…